From Eventbrite:

THE PACE TRIAL

Dr. David Tuller and Professor Brian Hughes have investigated and written extensively on the subject and will provide attendees with a unique opportunity, of the importance of their investigations being made available to decision makers, healthcare providers, academics and patients alike.

A controversial medical trial for the treatment of myalgic encephalomyelitis (ME), known as the PACE trial, has been found to be ‘not reliable’ by a major new study. Described during the recent 3 hour Westminster Parlamentary Debate, as “One of the greatest medical scandals of the 21st Century.”

The large-scale, government-funded PACE trial cost £5 MILLION made claims that psychotherapy and exercise helped the estimated 250,000 sufferers of ME. Also known as chronic fatigue syndrome, ME presents symptoms such as unrelenting fatigue and profound pain. It has no known cure and can be exacerbated by physical exertion.

The PACE trial was funded by the UK Medical Research Council, Department of Health and Social Care (UK) for England, Scottish Chief Scientist Office, it is the most expensive piece of research into ME/CFS ever conducted. The trial dominates clinical policy in the United Kingdom and other countries, in both government funded health care and private medical insurance.

PACE stands for “Pacing, graded activity and cognitive behavioural therapy; a randomised evaluation“

Refreshments are included in all ticket options, will be provided after the speaker’s presentations

More on the speakers.

David M. Tuller, DrPh, is a Senior Fellow in Public Health in Journalism at the Center of Global Public Health, School of Public Health, University of California, Berkeley, California. Previously to this appointment in July 2017, he was of academic coordinator of the University of California, Berkeley’s joint masters program in public health and journalism. He’s worked as a reporter and editor for ten years at the San Francisco Chronicle, served as health editor at Salon.com and frequently writes about health for The New York Times.

David covered the PACE trial results for The New York Times in February 2011. However he became concerned about the trial and wrote a further article regarding case definitions which resulted in an immediate response from the PACE trial authors which resulted in him investigating the trial and its authors further after contact with others in the patient community.

Brian Hughes is a Professor in Psychology, and a specialist in stress psychophysiology. He is the author of Conceptual and Historical Issues in Psychology (London: Pearson/Prentice Hall, 2012), Rethinking Psychology: Good Science, Bad Science, Pseudoscience (London: Palgrave, 2016) and Psychology in Crisis (London: Palgrave, 2018).

He serves as Dean of International Affairs at NUI Galway, and sits on the university’s Academic Management Team. He sits on the editorial boards of a number of international journals of psychophysiology, health psychology, and behavioural medicine, and is an Associate Editor of the International Journal of Psychophysiology.

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